by European Public Health Alliance | May 16, 2023 | Opinion
Guest article by the European Respiratory Society In a fast-paced ever-changing world, research and the free flow of scientific data are key to ensure Europe’s healthy population as well as to prepare for new health challenges. A well-functioning European Health Data...
by European Public Health Alliance | May 16, 2023 | Opinion
Guest article by the European Organisation for Rare Diseases (EURORDIS) The European Health Data Space (EHDS) could be a new opportunity to ultimately improve the lives of over 30 million Europeans living with rare diseases. There are 6000 various rare diseases but...
by European Public Health Alliance | Mar 30, 2023 | Statements
In a Joint Statement, together with AIM, EAHP, EPF, EURODIS and HOPE, we call for a society-centred digitisation of healthcare. On behalf of patients, healthcare professionals, hospital pharmacists, payers, and healthcare institutions, we call on policymakers to: Not...
by European Public Health Alliance | Mar 21, 2023 | Statements
We, the undersigned not-for-profit organisations, representing patients, healthcare professionals, hospital pharmacists, payers, and healthcare institutions call on European policy-makers to ensure a more coherent, fair and society-centred approach to the European...
by Bhavani Srinivasan | Nov 24, 2022 | Position & Policy Papers
The European Health Data Space (EHDS) regulation aims to provide a common framework across EU Member States for accessing and sharing of health data such as electronic health records, patient registries, hospital discharge reports, and genomic data to support...
